Vascular EDS Conference 2017

We are proud that Annabelle’s Challenge and The Ehlers-Danlos Support UK jointly hosted the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 at the Village Hotel, Manchester Bury. Speakers and content was provided by the NHS EDS Diagnostic Services for complex cases in Sheffield & London.


We provided medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS. The event also offered a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and form lasting friendships.


Families attended the event and activities were supplied by Theatre Dance Studios providing a variety of sessions including dance, drama, singing, performing arts and crafts.


Tickets were free of charge to EDS UK Members, Annabelle’s Challenge Members and selected registered Medical Practitioners. We were able to offer tickets free of charge due to kind Grants from the Foyle Foundation, the Big Lottery Fund funds raised in memory of Louise Webb and Jez Freedman.

Programme of speakers

Conference Videos

To view the 2017 conference videos click here - Please log in to view content which is for conference attendees and members of Annabelle's Challenge & EDS UK.


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Conference videos courtesy of Barrel Hill Media

Conference photos - Day 1

Conference photos - Day 2

Conference photo's courtesy of Meg Thornton Photography

The UK's first ever vascular EDS conference is in loving memory of Jez Freedman 1979 - 2015

and Louise Webb who's family kindly donated towards the childrens entertainment.

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