Support Groups

VEDS Support Groups

Our regional face-to-face support groups are safe, confidential, relaxed meetings for those touched by vascular EDS i.e. parents, carers, friends, children, and partners.

Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.

They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.

Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.

It is free to attend ANY of our regional support groups and lunch is included, simply select the region nearest to your location and register your interest.

April 2024

Saturday 6th - Yorkshire

Saturday 27th - South West

May 2024

Saturday 18th - London and Scotland

North East and North West

North East
Peter

North West
Danika
Yorkshire

Yorkshire & Humber
Sophie
The Midlands

East Midlands
Jared

West Midlands
Jared
London

London
Bonnie
South East and East of England

East of England
Claire

South East
Jacqui
South West

South West
Gemma & Taylor
Scotland

Scotland
Linda
Wales

Wales
Lynda
Northern Ireland

Northern Ireland
Scarlett
Ireland

Ireland
Scarlett

AUSTRALIA MEMBERS

Meet Danika

Danika - Patient Coordinator

Danika joined Annabelle's Challenge in April 2022 taking on the role of patient coordinator.

"Before joining the charity I was a childcare professional with 13 years’ experience of working with children and their families.

Recently I completed my studies of Mental Health at college and gained a qualification in Mental Health Awareness Level 1 and Level 2 in Social Care and Children’s And Young Peoples Mental Health."

Danika is a Mental Health First Aider accredited by MHFA England.

Meet Scarlett

Scarlett - Patient Coordinator

Scarlett joined Annabelle's Challenge in October 2023 taking on the role of patient coordinator.

"I am so pleased to be given this amazing opportunity to take on the role as a patient coordinator for the charity to help support all our members both existing and newly diagnosed. I have previous experience in childcare, and I love to travel especially to Ireland".

Scarlett is a Mental Health First Aider accredited by MHFA England.