A Safe and Supportive Space

Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.

Led by People Who Understand

Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.

What You Can Expect

A welcoming place to:

• Share information and practical tips
• Listen to others’ experiences
• Explore ways of navigating life with vascular EDS
• Light refreshments provided
• Free to attend

Why Attend?

Joining a regional support group can help you:

• Build confidence in managing vEDS
• Feel more informed and empowered
• Reduce feelings of isolation
• Connect with others who understand what you’re going through
• Strengthen support for your loved ones

Many people find comfort in knowing they are not alone.

14/03/26

London & South East Support Group

22/03/26

West Midlands (South) Support Group

18/04/26

North West Support Group

25/04/26

East Midlands Support Group

07/06/26

North East Support Group

Due to an increase in membership numbers of people joining the charity and the size of each regions across the UK, we are looking to increase the number of volunteer coordinators to help support the vEDS community at a local level.

A regional coordinator's role involves overseeing and managing support group meetings, events, or initiatives within their region for Annabelle’s Challenge.

If you have lived experience with vascular EDS either personally or in a caring role and live within the following areas we would love to hear from you:

• Scotland
• Wales
• East of England
• London
• South East
• Yorkshire

Call us on 0161 797 4746 for an informal chat about what the role entails.