South East VEDS Support Group

Welcome to the South East vEDS Support Group.

Meet Jacqui Fish

I’m delighted to be joining Annabelle's Challenge as the area coordinator for the South East as well as being on the Steering Group.

My son George, was diagnosed with vascular EDS aged 7 and at that time there was no support and no help. We were told to let him have as normal a childhood as possible and hope that there would be better knowledge and treatments available when he was older. So, fast forward to now, we have specialist clinics and Annabelle’s Challenge so things are definitely brighter.

I have been an area coordinator for Ehlers-Danlos Support UK for many years, running a support group for the Surrey area and I also fundraise for them and AC. In 2019 I qualified as a Community First Responder for the Southeast Coast Ambulance Service and although I am currently stood down to protect George I have found the training invaluable in helping him with his vEDS.

Life with vascular EDS is challenging both physically and mentally. I have seen how much support groups can help people to cope with their conditions and I hope that my experience with EDS UK will enable me to help the vascular EDS community in the South East.

For so many years we lived knowing no one else with this condition and it has been wonderful to meet lots of you already either in person or on-line. I am really excited to get to know our vascular EDS community better so that we can all share our knowledge and experience to help and support each other.

Our next support group:

Date: Saturday, 14th March 2026

Time: 1:00pm - 4:00pm

Location: London

Venue: Strand Palace Hotel, 372 Strand, London WC2R 0JJ

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VEDS Support Groups

A Safe and Supportive Space

Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.

Led by People Who Understand

Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.

What You Can Expect

A welcoming place to: