VEDS Research Study 2021

Exploring perceived barriers to diagnosis, treatment, and ongoing care in vascular EDS

We conducted a questionnaire and interviews as part of a research study to increase the understanding of the barriers individuals with vascular Ehlers-Danlos Syndrome face in diagnosis, treatment and access to ongoing care.

Introduction to the study
Ehlers-Danlos Syndrome is a group of heritable connective tissue disorders consisting of several types varying in severity. 

There is little published evidence reporting barriers vEDS patients face in their care. This study aimed to explore perceived barriers vEDS patients faced in diagnosis, treatment and access to ongoing care in the United Kingdom.
Research Summary

VASCULAR EDS RESEARCH

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