Welcome to the Wales VEDS Support Group.

We are currently recruiting a coordinator for Wales.

A Safe and Supportive Space

Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.

Led by People Who Understand

Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.

What You Can Expect

A welcoming place to:

• Share information and practical tips
• Listen to others’ experiences
• Explore ways of navigating life with vascular EDS
• Light refreshments provided
• Free to attend

How many vEDS members live in Wales?

This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.