Retreat Weekends
VEDS retreat weekends bring our community together for a much‑needed break, connection, and support.
Hosted by the Annabelle’s Challenge team, and often joined by a genetic counsellor, these special weekends offer patients and families affected by vascular EDS the chance to meet others who truly understand their journey.
Our retreats create a safe, relaxed space to share experiences, exchange practical advice, and build lasting friendships with people who “get it”.
They’re more than a getaway. They’re a reminder that no one has to face vEDS alone.
Blackpool 2026
Past Retreat Weekends
550
MEMBERS

1 - 82
AGE RANGE
10
Over 10 years service supporting the Vascular EDS community.
COL3A1
Vascular EDS is caused by a mutation in the COL3A1 gene.
740
It is estimated around 740 people have Vascular EDS in the UK.










