Retreat Weekends

VEDS retreat weekends bring our community together for a much‑needed break, connection, and support.


Hosted by the Annabelle’s Challenge team, and often joined by a genetic counsellor, these special weekends offer patients and families affected by vascular EDS the chance to meet others who truly understand their journey.



Our retreats create a safe, relaxed space to share experiences, exchange practical advice, and build lasting friendships with people who “get it”.


They’re more than a getaway. They’re a reminder that no one has to face vEDS alone.

Blackpool 2026

Past Retreat Weekends

550


MEMBERS

1 - 82


AGE RANGE

10


Over 10 years service supporting the Vascular EDS community.

COL3A1


Vascular EDS is caused by a mutation in the COL3A1 gene.

740


It is estimated around 740 people have Vascular EDS in the UK.