Welcome to the Ireland VEDS Support Group.
Meet Mary Weir
Mary worked in Dublin City Council for 40 years up to senior management level and across many remits including Health and Safety, Community, Finance, Project and Area Management and Event Management.
Mary retired from full time employment in 2020 but continues to carry out freelance in the event sector. Mary's son in law Conor and her granddaughter Orla were both diagnosed with vEDS last year. They currently live in America and Mary visits regularly. Mary lives in Co. Meath but originally hails from Offaly.
She is delighted to be in a position to offer her time as a local coordinator and is looking forward to linking in with everyone in the group in Ireland and Northern Ireland.
Meet Afric Bolger
As a parent of someone who has vascular EDS we would be absolutely lost without the support of Annabelle's Challenge.
I want to be able to share our journey with others and our experiences with the health services here in Ireland.
And also just to be there for anyone who is affected by vascular EDS.
Our next support group:
BOOKING FORM
VEDS Support Groups
A Safe and Supportive Space
Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by People Who Understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What You Can Expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Light refreshments provided
- Free to attend
How many vEDS members live in Ireland & Northern Ireland?
16
11 - 71
