Welcome to the West Midlands VEDS Support Group.

This group and our meetings are led by Lynette, Marie & Kerri.

West Midlands - South

Meet Lynette Coffey

Lynette has worked in financial services since 1995 and currently works for a financial planning company. In her spare time, she enjoys the performing arts, especially theatre and live music. 


In 2024, Lynette’s husband and two children were diagnosed with vEDS.


She is honoured to now be part of the Annabelle’s Challenge team and is looking forward to connecting with and supporting others in the vEDS community, particularly in her local area in the West Midlands (South).

Meet Marie Coffey

Marie has dedicated her life to nursing. Her family are originally from Ireland but she now lives in the West Midlands. 


Following the loss of her husband in 2023, the presence of vEDS in the family was discovered with Marie’s son being diagnosed.


Marie is looking forward to giving back to Annabelle’s Challenge who have supported her since the diagnosis.

West Midlands - North

Meet Kerri Stanyer

Kerri is a regional coordinator for Annabelle’s Challenge covering the North Staffordshire area of the West Midlands. 


Kerri was diagnosed with Vascular Ehlers Danlos Syndrome in 2016 at 44yrs of age. 


Since then, she’s been medically retired from her role within the local authority at Stoke on Trent city council as the Strategic Work force Development Manager, managing the training, skills and behaviours of over a 8,000 diverse workforce. 


Kerri is looking forward to coordinating and providing a warm welcome to anyone touched with vascular Ehlers Danlos syndrome who would like to connect and build networks by attending her groups. 

Our next support group:

Date: Sunday, 22nd March 2026

Time: 2:00pm 

Location: Sutton Coldfield

Venue: Sutton Park Nature Reserve, Park Rd, Sutton Coldfield, Birmingham B74 2YT

Meeting point: Brown’s Brasserie Sutton Park car park
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VEDS Support Groups

A Safe and Supportive Space

Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.


Led by People Who Understand

Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.


What You Can Expect

A welcoming place to:

  • Share information and practical tips
  • Listen to others’ experiences
  • Explore ways of navigating life with vascular EDS
  • Light refreshments provided
  • Free to attend

How many vEDS members live in the West Midlands?

40


MEMBERS

5 - 82


AGE RANGE

Freephone helpline 

0800 917 8495