Get Involved
Get Involved and Make a Difference
Every action you take helps strengthen and support the vascular EDS community.
As a small charity, we rely on people like you - families, friends and healthcare professionals to help us reach those who need us most.
Your support changes lives
Fundraising and awareness are the heartbeat of our work. When you get involved, you help us:
- Reach more people living with vEDS
- Provide vital support to affected families and individuals
- Fund research that brings hope for better treatments and a cure
- Raise awareness of a rare and often misunderstood genetic condition
It’s not always about the money
Every share, like, comment, and conversation helps amplify our message. Engaging with our social media, spreading the word and helping others learn about vEDS is a free and powerful way to support our community.
Your voice matters — and it makes a real impact.
We’re here to support your ideas
Whether you’re planning a fundraiser, organising an event, or simply looking for ways to help, our team is ready to guide you.
Call us:
0800 917 8495
Hours:
Monday to Friday, 9:00am – 5:00pm
Email:
info@annabelleschallenge.org
Your involvement means everything
Every person who stands with us strengthens the vEDS community. Together, we can raise awareness, inspire hope and drive meaningful change for everyone affected by vascular EDS.
FRIDAY 15 MAY
Ways you can support us
Join
Joining us is one of the best ways to get involved with our charity and supporting us.
How the money you raise can make a difference
£10
could fund a patient VEDS Emergency Pack and access to emergency preparedness resources.
£25
could give two people the chance to speak to a patient coordinator on our helpline.
£50
could give a member affected by vascular EDS access to a confidential, counselling session.
£100
could provide an in-person support group for up to 10 people touched by vascular EDS.
We started fundraising in 2013 and since then we have raised over £1million thanks to our members, supporters donors and grant funders.
Our goal is to raise a further £1million by 2030 to help further fund research and support for our vEDS community.
Your donations help to fund:
- Research
- School training and support
- Annabelle's Challenge counselling service
- Peer support
- Freephone helpline
- Family retreat weekends
- Regional support groups
- VEDS Support Programme
- Translated emergency information
- Conferences and symposiums
Set up your fundraising page
We have partnered with Enthuse and JustGiving as our chosen platforms for online fundraising.
Creating a fundraising page is a great way to share your event, encourage donations from supporters and keep everyone informed about your progress. Whether you’re fundraising as an individual, team or company, we can help you.
Socialise With Us
We’re a Sociable Bunch at Annabelle’s Challenge!
Join us online and help raise vital awareness for vascular EDS.
By following our social channels, sharing our posts and celebrating your fundraising efforts with your followers, you help our message travel further and reach the people who need us most.
Every like, share and comment helps amplify the voice of the vEDS community. Your support online truly makes a difference!
Corporate Partnerships
Make Annabelle's Challenge your Charity of the Year! Whether this is for one-year, multiple years or as part of a wider CSR / ESG strategy, we can work with you to develop a bespoke plan of events including our REDS4VEDS global campaign.
For further information please call us on 0800 917 8495.
Shop online for us
Give as you Live Online is the free and easy way to raise money for Annabelle's Challenge when you shop online with 6,000+ stores.
From holidays and travel, to clothing and gifts, you can raise hundreds of pounds from your everyday shopping, all at no extra cost to you.
Simply sign up for an account and start shopping to make a difference for Annabelle's Challenge!
