Meet Gemma
Hello, I'm Gemma, and I am delighted to be the Regional Coordinator for the South West. I was diagnosed with vEDS in 2016 and joined Annabelle's Challenge shortly afterwards.
Alongside my role as Regional Coordinator, I am a member of the Annabelle's Challenge Steering Group and Emergency Care Project Team, while also working as a GP.
I hope to use my experience as a doctor to help bridge the gap between people living with vEDS and the healthcare professionals who support them. I am passionate about improving understanding of the condition and helping individuals feel empowered in managing their health.
I can't wait to meet others affected by vEDS through our support groups, share experiences, and build new friendships along the way.
Our Next Support Group
Date: Saturday 21 November
Time: 12.30pm - 2.30pm
Location: Poole
Venue: Rob's Filling Station, 158 Stanley Green Rd, Oakdale, Poole BH15 3AH
Booking Form
VEDS Support Groups
A safe and supportive space
Our support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by people who understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What you can expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Updates on your charity and research
- Light refreshments provided
- Free to attend
South West Members
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