North East VEDS Support Group

Welcome to the North East VEDS Support Group.

Meet Connor Peebles

I am proud to be assigned the Regional Coordinator role for the North East of England. I am a support worker, empowering individuals with learning disabilities. My work focuses on upskilling, mentoring, and providing meaningful opportunities that enable them to live fulfilling and independent lives.

In addition to my role in the community, I own a bouncy castle and children's entertainment business, creating magical memories for families across the North East. Bringing joy to children and their families is at the heart of what I do, ensuring that every event is filled with fun and excitement.

In September 2024 I was diagnosed with vascular Ehlers-Danlos Syndrome (vEDS), a diagnosis I share with my son Alfred. While this has presented many challenges, it has also strengthened my determination to advocate for awareness and support for others affected by the condition.

Prior to our diagnoses I raised over £90,000 for various charities with a target of £100,000 by my 30th birthday. With this in mind, every single penny moving forward will be donated to Annabelle’s challenge.

I am delighted to be signed the role where I look forward to making a positive impact within our vEDS community, alongside my role as a trustee for the charity.

Connor's Mission

Meet Peter Black

Hi, my name is Peter and live in County Durham and delighted to be the Area Coordinator for the North East.

In 2012, I was diagnosed with vascular EDS after a splenectomy in 2008 due to an aneurysm. I presently have 3 Aneurysms all on major arteries and one of which has dissected. I do have days when I am very tired due to all of this and other health related issues, and busy myself with my Model Railway.

Whilst this does stop many activities it does not stop me from researching matters and makes me think about how difficult it must be for the younger generation who have been diagnosed.

Our next support group:

Date: Sunday, 7th June 2026

Time: 2:00pm - 4:00pm

Location: Newcastle upon Tyne

Venue: The Gibside Hotel, Front St, Whickham, Newcastle upon Tyne NE16 4JG

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VEDS Support Groups

A Safe and Supportive Space

Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.

Led by People Who Understand

Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.

What You Can Expect

A welcoming place to: