Welcome to the North West VEDS Support Group.
Meet Amy Johnson
I have a background in care with 18 years’ experience working with people of all ages with various care needs.
I wanted to take on this role to give back to Annabelle’s Challenge, without whom I would be completely lost! And to also hopefully help others who could be struggling.
Oliver and I both have vEDS and have personal experience of living with this condition, we have been members of the charity since 2019.
Our next support group:
BOOKING FORM
VEDS Support Groups
A Safe and Supportive Space
Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by People Who Understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What You Can Expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Light refreshments provided
- Free to attend
How many vEDS patients live in the North West?
36
2 - 73
