Welcome to the Northern Ireland VEDS Support Group. This group and our meetings are led by Northern Ireland coordinator Scarlett.
Meet Scarlett Thomas
Scarlett joined Annabelle's Challenge in October 2023 taking on the role of patient coordinator.
"I am so pleased to be given this amazing opportunity to take on the role as a patient coordinator for the charity to help support all our members both existing and newly diagnosed. I have previous experience in childcare, and I love to travel especially to Ireland".
She is also a Mental Health First Aider accredited by MHFA England.
Our next support group:
Booking Form
VEDS Support Groups
A Safe and Supportive Space
Our regional support groups offer a safe, confidential and relaxed environment for anyone affected by vascular EDS. This includes parents, carers, partners, friends and children.
Led by People Who Understand
Each support group is facilitated by one of our dedicated volunteer regional coordinators. All of them have lived experience of vascular EDS, either personally or in a caring role, so they truly understand the challenges and emotions that can come with living with this diagnosis.
What You Can Expect
A welcoming place to:
- Share information and practical tips
- Listen to others’ experiences
- Explore ways of navigating life with vascular EDS
- Light refreshments provided
- Free to attend
How many vEDS members live in Northern Ireland?
5
17 - 51
