Welcome to the Scotland VEDS Support Group. This group and our meetings are led by volunteer regional coordinator Linda.
Meet Linda Clamp
Hi, I am Linda, the regional coordinator for the Scotland VEDS Support Group. I joined Annabelle's Challenge in October 2016.
I put my name forward as I was the first person to join our wee group from Scotland, as far as I know. I was diagnosed following a SCAD.
I have read most of the documents printed on our condition, although my failing memory makes it difficult to remember most of them. I was a staff nurse in a dementia unit, which has taught me great patience. My ultimate goal is to find a cure for vascular Ehlers-Danlos syndrome in my grandsons lifetime.
VEDS Support Group
Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!
Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.
They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.
Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.
How many vEDS members live in Scotalnd?
13
10 - 67
Our next support group:
Register Your Interest
This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.
Freephone helpline
0800 917 8495
