Organisations

Supporting Organisations

The Ehlers-Danlos Support UK

EDS UK was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes. We aim to help them live a full, active and positive life.

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The Ehlers-Danlos Society

We are proud to be an official global affiliate of The Ehlers-Danlos Society.

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The VEDS Movement

We are a division of The Marfan Foundation dedicated to charging forward and making change for everyone affected by vEDS in the US.

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FIGHT vEDS

Our mission is to arm vEDS patients and physicians in the US with up-to-date information on how to fight vEDS and to provide information about promising new research and treatments.

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The Aortic Dissection Charitable Trust

The Aortic Dissection Charitable Trust aims to improve the diagnosis of aortic dissection and bring consistency of treatment across the whole patient pathway.

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beat SCAD

Beat SCAD is a charity whose mission is to increase awareness of a heart condition that is currently rare and under-diagnosed.

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Aortic Dissection Awareness UK

We are the voice of Aortic Dissection patients in the UK & Ireland. Providing friendship, support and advice during their most challenging times.

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Careline365

We are an official partner of Careline365 a leading national personal alarms provider. They support customers to maintain their independence with a 24/7 emergency monitoring service.

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