VEDS Conference 2025 Day 1 Welcome, Introductions and Scene Setting, presented by Jared Griffin, Founder & CEO of Annabelle's Challenge.

A unique collaboration between Annabelle's Challenge and a highly specialised NHS EDS Service, presented by Dr Glenda Sobey and Dr Fleur van Dijk.

Genetics of vEDS- anything new, presented by Duncan Baker, Musculoskeletal and Respiratory services lead and Clinical Scientist.

Vascular EDS overview / Managing other medical conditions when you have vEDS, presented by Dr Emily Woods, Clinical Genetics Registrar.

Cardiology and surveillance in vascular EDS, presented by Dr Oliver Watson, Consultant Cardiologist.

Self-advocacy and emergency preparedness – doing it well! presented by Juliette Harris, Genetic Counsellor with Jacqui Fish & Gemma Hasnaoui, Emergency Care Project Team.

Current and future research prospects - NEEDS Study, presented by Dr Fleur van Dijk, Consultant Clinical Geneticist.

Living well with vEDS - A patient view/lived experience, presented by Sophie Leftley.

Living well with vEDS, presented by Dr Neeti Ghali, Consultant Clinical Geneticist.

Living well with vEDS - A patient view/lived experience, presented by Ryan Winter.

Medications & Treatments in vEDS, presented by Jessica Bowen, Genetic Counsellor.

Exercise-based lifestyle intervention programme, presented by Ian Thistlewood, PhD Student.

The Road to 2026 - The EDS Society, presented by Lara Bloom, CEO of The Ehlers-Danlos Society.

Conference Day 1 closing remarks by David Catterall DL, Chair of Annabelle's Challenge.

Conference Day 2 Welcome, presented by Jared Griffin, CEO of Annabelle's Challenge.

Living with vEDS: What are the affects of partner relationships and family planning, presented by Angharad Cullinane, Trainee Genetic Counsellor.