Free Membership
Free Lifetime Membership
A diagnosis of vascular Ehlers‑Danlos syndrome (vEDS) can feel overwhelming, but you don’t have to face it alone. Becoming a member of Annabelle’s Challenge is one of the most meaningful steps you can take to ensure you and your family receive the resources, guidance and support you deserve.
Support for families and individuals living with vEDS
Whether you have vEDS yourself or you’re caring for someone with vEDS, our membership gives you access to trusted information, practical help and a community that understands.
For parents of a child diagnosed with vEDS, we offer specialist support for nursery, primary and secondary school settings. This includes:
- In‑person visits to provide training and guidance in primary and secondary schools
- Virtual training via Teams / Zoom for nursery / pre-school settings
- Help developing and implementing safety plans
- Support during key transitions, including moving from primary to secondary school
Our goal is to help your child stay safe, included and empowered to lead a full and rewarding life during their school experience.
What you’ll receive
Once your application is accepted, members living in the UK and Ireland will receive:
- VEDS Information Pack
- A personalised VEDS Emergency Pack, tailored to your needs
- Access to our free, confidential counselling service
- An introductory video call with our team to discuss management guidance, answer questions and help you feel confident moving forward
Packs are usually dispatched within 7 working days.
Need help applying?
If you have questions or would like support completing your application, we’re here to help.
Contact us at:
info@annabelleschallenge.org
or call
0800 917 8495.
Please note: We are a registered charity based in the UK and you need to be aware that some of our resources and benefits listed below are UK specific and are subject to change and availability without notice.
Membership Benefits
Apply Now
You are now just 3 steps away from joining Annabelle's Challenge as a member:
Membership Application
Diagnostic Confirmation
If you and/or a family member have been diagnosed with vascular EDS, we will require a copy of your letter confirming diagnosis or genetics report before we can process your membership application, once approved you will have free access to all our resources and support services.
Recently diagnosed / appointment with the EDS Service in Sheffield/London?
Please proceed with your application today and forward a copy of your confirmation letter to us when you receive it.
Diagnostic confirmation letters / genetics report should be sent to us by either:
Upload file:
Attach to the application form above before submitting
Email: diagnosis@annabelleschallenge.org
Post:
Annabelle's Challenge, Walshaw Park House, Walshaw Road, Bury BL8 1PY
WhatsApp:
Send to +441617974746 via the free encrypted messaging app
We won't pass your personal details on to anyone else and we do not have access to your NHS medical records. For information about how we'll keep your data safe can be found in our Privacy Policy.
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NHS EDS Service
We work in partnership with the EDS National Diagnostic Service, a highly specialised service commissioned by NHS England for individuals and families who are suspected to have complex Ehlers-Danlos Syndrome.
Established in 2009 the service runs two specialist clinics for patients based at Sheffield Northern General Hospital and the Northwick Park & St Mark's Hospitals in London.
Meet Danika
Meet Scarlett
Page last updated: January 2026
