Second International Symposium in London

London Symposium: Living Better with Marfan, Loeys-Dietz, VEDS, and Stickler


Please join us for our Second International Symposium/London: Living Better with Marfan, Loeys-Dietz, VEDS and Stickler.


The presentations, which will feature medical experts from the UK and from around the world, will be geared to individuals and families living with these conditions. Attendees have the opportunity to ask questions of the experts. They will also be able to network with the experts and with other people who are on the same medical journey.


Breakfast will be available, and we will also have a Creating Connections lunch. General presentations will be applicable to Marfan, LDS, VEDS, and Stickler, while we will also offer breakout sessions that focus on each of the conditions.


Registration is free but required.


The Brompton Fountain is offering onsite activities during the symposium hours for children ages 5-12. If you would like to sign up for your child/children, please contact Trudy Nickels at trudyn@thebromptonfountain.org.uk.


Childcare services will be provided and managed by the Brompton Fountain. The Marfan Foundation is not responsible for the supervision, care, or safety of children during the event.


The Second International Symposium/London: Living Better with Marfan, Loeys-Dietz, and VEDS is brought to you by Annabelle's Challenge, Marfan Trust UK, the Marfan Foundation, Stickler Syndrome UK, and The Aortic Dissection Charitable Trust.

Register Here

Symposium Program

Radisson Blu Hotel, London Bloomsbury UK

9 - 13 Bloomsbury Street, London WC1B 3QD