Health-Related Anxiety Study
Health-related anxiety and quality of life in individuals with Vascular Ehlers-Danlos Syndrome and their families
Objective
To understand the relationship between health-related anxiety and quality of life in individuals with Vascular Ehlers-Danlos syndrome and their family members.
Method
Data will be collected through an online questionnaire through the University of Sussex, 1 set of questions for patients, 1 set of questions for family members.
Eligibility
To participate in this study you must be aged 18+ and have a genetically confirmed diagnosis of vascular EDS or be a family member of someone who has vascular EDS and a UK resident.
Lead Researcher
Holly Rawlings-Taylor, 3rd year university student and member of the Annabelle's Challenge Steering / PPEI Group.
