Due to an increase in our membership numbers across the UK we are looking for volunteer regional coordinators in most regions. This role is ideal for existing members who are impacted by vascular EDS either diagnosed or a carer for a loved one who has vascular EDS.

Closing Date

Ongoing Recruitment

Location

Regional In-Person

The Steering / PPIE Group help to shape the future of the charity as it continues to grow providing support, guidance and oversight of progress of all community based projects including events and research.

Closing Date

Friday 27th February 2026

Location

Remotely