Alfred's Story

The events of 2025 are deeply personal as at only one year old, our precious boy, Alfred, was diagnosed with something no parent should ever have to face: Vascular Ehlers-Danlos Syndrome (vEDS).

A rare, life-threatening genetic condition that has forever changed the rhythm of our lives.

We now live with a quiet fear that shadows even the brightest of days. Alfred's laughter is a melody that we cling to. His cuddles, our sanctuary. We carry the weight of this diagnosis with heavy hearts, yet filled with fierce, unwavering love.

The VEDS Dad

I am Alfred's dad and a support worker, empowering individuals with learning disabilities. My work focuses on upskilling, mentoring, and providing meaningful opportunities that enable them to live fulfilling and independent lives.

In addition to my role in the community, I own a bouncy castle and children's entertainment business, creating magical memories for families across the North East. Bringing joy to children and their families is at the heart of what I do, ensuring that every event is filled with fun and excitement.

In September 2024 I was diagnosed with vEDS, a diagnosis I share with my son Alfred. While this has presented many challenges, it has also strengthened my determination to advocate for awareness and support for others affected by the condition.

I joined the board of trustees at Annabelle's Challenge in February 2026 alongside my role as regional coordinator for the North East.

Connor Peebles

I’m incredibly proud to say that you all have helped me officially raise well over £100,000 for so many causes.

Since 2017, what began as a tribute turned into something far bigger than I could have ever imagined.

Every step within the last 9 year has been powered by people who care. And now, more than ever, I continue doing this for my boy and my family 

To everyone who has donated, liked, shared, supported, sponsored, ran, cycled, sparred, played, volunteered, or simply just believed in what I do; THANK YOU.

None of this happens alone.
£100,000 raised isn’t just a number.
It’s thousands of acts of kindness.
It’s hope for people who need it most.
It’s proof that when people come together with purpose, incredible things can happen.
And this is only the beginning. 

Next stop; £1,000,000 
For as-long as my body holds out

Connor xx 

Team AC were delighted to attend The White Feather Ball, beautifully hosted by Connor & Emma Peebles in aid of Annabelle’s Challenge. The evening was a tremendous success, filled with generosity, celebration and a wonderful sense of community.

We are incredibly grateful to everyone who attended and helped make this such a memorable occasion. It was especially heart‑warming to see Annabelle enjoying herself, surrounded by members of the vEDS community coming together in support and solidarity.

This special event also marks an amazing milestone! Connor’s fundraising has now reached £29,575, an extraordinary achievement that will make a real difference to families living with vascular EDS.

Thank you to Connor, Emma, and every supporter who helped make The White Feather Ball truly unforgettable.

After joining Newcastle's SCULPT Fitness gym, the team there put together a personalised fitness regime that didn't compromise Connor's health. When he told the members about Alfred, they created a fundraising event called Africa 4 Alfred.

The event took place on April 17-19 with teams of six people using bikes at the gym to travel 8,000,000 metres – the distance from the most northerly to the most southerly tip of Africa.

"Serial fundraiser Connor Peebles, 29, is dad to little Alfred - and both of them have rare genetic disease Vascular Ehlers-Danlos Syndrome (vEDS).
 
Speaking about the diagnosis, Connor said: "It was news that no parent wants to hear. The condition weakens the connective tissues that hold the body together — particularly in the arteries and hollow organs."
 
"I want to do as much as I can. I have already raised £11k, and I’m hoping that with the bike ride we can get this number to £20k. I am going to do whatever I can to help fund research because I want to one day be able to say that Alfred 'had vEDS' and not that he has it."