I am a support worker, empowering individuals with learning disabilities. My work focuses on upskilling, mentoring, and providing meaningful opportunities that enable them to live fulfilling and independent lives.

In addition to my role in the community, I own a bouncy castle and children's entertainment business, creating magical memories for families across the North East. Bringing joy to children and their families is at the heart of what I do, ensuring that every event is filled with fun and excitement.

In September 2024 I was diagnosed with vascular Ehlers-Danlos Syndrome (vEDS), a diagnosis I share with my son Alfred. While this has presented many challenges, it has also strengthened my determination to advocate for awareness and support for others affected by the condition.

I joined the board of trustees at Annabelle's Challenge in February 2026 alongside my role as regional coordinator for the North East.

After joining Newcastle's SCULPT Fitness gym, the team there put together a personalised fitness regime that didn't compromise Connor's health. When he told the members about Alfred, they created a fundraising event called Africa 4 Alfred.

The event, set to take place on April 17 2026, will see teams of six people using bikes at the gym to travel 8,000,000 metres – the distance from the most northerly to the most southerly tip of Africa.

This event is deeply personal as at only one year old, our precious boy, Alfred, has been diagnosed with something no parent should ever have to face: Vascular Ehlers-Danlos Syndrome (vEDS). A rare, life-threatening genetic condition that has forever changed the rhythm of our lives.

We now live with a quiet fear that shadows even the brightest of days. Alfreds laughter is a melody that we cling to. His cuddles, our sanctuary. We carry the weight of this diagnosis with heavy hearts, yet filled with fierce, unwavering love.

We are determined not to let this fight go unnoticed. The White Feather Ball is our call for awareness, for action, and for compassion.

"Serial fundraiser Connor Peebles, 29, is dad to little Alfred - and both of them have rare genetic disease Vascular Ehlers-Danlos Syndrome (vEDS).
 
Speaking about the diagnosis, Connor said: "It was news that no parent wants to hear. The condition weakens the connective tissues that hold the body together — particularly in the arteries and hollow organs."
 
"I want to do as much as I can. I have already raised £11k, and I’m hoping that with the bike ride we can get this number to £20k. I am going to do whatever I can to help fund research because I want to one day be able to say that Alfred 'had vEDS' and not that he has it."

Read the full story featured in The Chronicle Live.