Freephone helpline: 0800 917 8495      

COVID-19 UPDATES

COVID-19 Updates

UPDATE: 27 January

You can stop self-isolating at the start of day 6 if you get 2 negative rapid lateral flow test results on days 5 and 6 and do not have a temperature. Tests must be at least 24 hours apart. If either test is positive, wait 24 hours before testing again.


People aged 18 or over can pre-book a booster dose appointment 2 months after their second vaccine dose. You can get your booster dose 3 months after your second vaccine dose. Book your booster vaccination appointment or find a walk-in vaccination site.


Children aged 12 to 15 can now get their second vaccine dose if it’s been more than 12 weeks since their first vaccine dose.


Vascular EDS patients aged 12 and over who have not had a vaccination can be booked online.


You will not be required to wear a face covering, including in communal areas of schools, but the government suggests you continue to wear one in crowded and indoor spaces where you may come into contact with people you do not normally meet.


You’ll no longer need to show your NHS COVID Pass at venues and events by law.

Book your appointment

The Attic Project
We have partnered with The Attic Project who provide specialist support to help you deal with Benefits, Debt, Employment or Welfare issues. 

VEDS Support Programme
For details on our VEDS Support Programme including help with schools, VEDS management advice and clinic support please click here.

Mental health guidance and resources:



NHS Sheffield Health & Social Care - First steps in mindfulness


Every Mind Matters
Looking after your mental health, visit this website for support and advice click here.

Advice & Guidance

Find the latest NHS advice click here

Find the latest GOV advice click here

Find the latest WHO advice click here

Find the latest CDC advice click here

MENTAL HEALTH SUPPORT FOR PEOPLE WITH RARE FORMS OF EDS

Receiving a diagnosis or living with a rare form of EDS can be a very difficult emotionally and can have a huge impact, including anxiety, stress, low mood and emotional exhaustion. This is a normal response and it is common for people to feel they would like some more emotional support. The following information may be of help in providing possible avenues of support and information. Please note that the following information is provided in good faith and as a guide only. 

NHS SUPPORT

If you would like to talk to somebody about mental health or wellbeing, in the first instance you should talk to your GP. You can also read information about accessing mental health services and support at: 

You can also refer yourself directly to a psychological therapies service (IAPT) without seeing your GP as long as you are registered with a GP at:

These services offer therapies, such as cognitive behavioural therapy (CBT), for common problems including stress and anxiety.

PRIVATE COUNSELLORS AND THERAPISTS

British Association for Counselling and Psychotherapy approved therapists can be found at the following link: www.bacp.co.uk/search/Therapists

GENERAL MENTAL HEALTH CHARITIES
NHS recommended charities

The Samaritans - offers free, confidential, 24-hour emotional support over the phone (116 123) or by email (jo@samaritans.org), or face-to-face at your local branch: https://www.samaritans.org/branches

Mind - the mental health charity - offers information about mental health and accessing support on their website www.mind.org.uk They also provide information over the phone (0300 123 3393), by email (info@mind.org.uk) or by text (86463). 

Mind has also launched a ‘Find the Words’ Campaign. This aims to support individuals in talking about mental health with their GP: www.mind.org.uk/findthewords

Carers UK - offers a free helpline (0808 808 7777) that offers advice on financial and practical matters related to caring, as well as a listening service: www.carersuk.org/

Download Copy
Source: EDS National Diagnostic Service

Make a donation towards Vascular EDS research

Please help us fund future research into Vascular EDS and donate securely now. Your donation will be restricted to the research fund.
Donate Now
Share by: