Welcome to the North East VEDS Support Group. This group and our meetings are led by volunteer regional coordinator Peter.
Meet Peter Black
Hi, my name is Peter and live in County Durham and delighted to be the Area Coordinator for the North East.
In 2012 I was diagnosed with vascular EDS after a splenectomy in 2008 due to an aneurysm. I presently have 3 Aneurysms all on major arteries and one of which has dissected. I do have days when I am very tired due to all of this and other health related issues, and busy myself with my Model Railway.
Whilst this does stop many activities it does not stop me from researching matters and makes me think about how difficult it must be for the younger generation who have been diagnosed.
VEDS Support Group
Our regional face-to-face support groups are safe, confidential, relaxed meetings with lunch included!
Facilitated by our wonderful volunteer regional coordinators, all of whom have lived experience with vascular EDS either personally or in a caring role.
They offer a welcoming environment for you to meet others who are touched by vascular EDS. They provide a helpful way to share information, listen to each other’s experiences and together find ways of navigating the complexities of living with or caring for someone with vascular EDS.
Our support groups can help you build self-confidence, become more informed and this may lead to you becoming more in control of your life with vascular EDS. They help you feel you are not so alone including your loved ones.
How many vEDS members live in the North East?
22
10 - 61
Our next support group:
Register Your Interest
This support group also have a private Facebook group where you can get peer support from other members living in your region, please click here to request to join the group.
Freephone helpline
0800 917 8495
