The UK's first ever Vascular EDS Conference was jointly hosted by Annabelle's Challenge and The Ehlers-Danlos Support UK at the Village Hotel Manchester Bury on May 6th & 7th 2017.
Here are the official videos of the talks for the exclusive use of conference attendees and members of both charities.
Videos courtesy of Barrel Hill Media.
Jared Griffin, founder of Annabelle's Challenge opens the UK's first ever Vascular EDS Conference along with the Mayor of Bury Cllr Mike Connolly.
Dr Diana Johnson, Consultant Clinical Geneticist, NHS EDS National Diagnostic Service gives an overview of Vascular EDS.
Duncan Baker, Clinical Scientist, Sheffield Diagnostic Genetics Service talks about the Molecular Genetics and VEDS.
Prof Nigel Wheeldon, Consultant Cardiologist & Honorary Professor of Inherited Cardiac Conditions talks about Arterial Aneurysm and Dissection.
Claire Green, Genetic Counsellor, NHS EDS Diagnostic Service talks about the Vascular EDS Medical Emergency Card.
Dr Elena Cervi, Consultant Cardiologist - Centre for Inherited Cardiovascular Diseases, Great Ormond Street Hospital talks about Management of Vascular EDS in Childhood.
Dr Neeti Ghali & Dr Fleur van Dijk, Consultant Clinical Geneticist NHS EDS National Diagnostic Service talk about Research.
Isabella Marin, Texas USA, talks about Vascular EDS from a patient's perspective.
Sylvie Ehlers, Medic Alert UK, talks about Medic Alert for Vascular EDS.
Evie Evans, Ireland, talks about EDS from a patient's perspective and REDS4VEDS.
Victoria Whatton, London UK, talks about Vascular EDS from a parent's perspective.
Jared and Sarah Griffin talk to Manchester TV to raise awareness of Vascular EDS and the conference.
Jared Griffin, founder of Annabelle's Challenge promotes the Vascular EDS Conference.