Annabelle’s Challenge aims to promote, support, and encourage research into vascular EDS for people affected by vascular Ehlers-Danlos syndrome and ultimately a cure.


We focus on providing support, advice and information to patients, families, and clinicians. We work closely with the NHS EDS National Diagnostic Service to ensure the very latest news on vascular EDS is made available through our website, newsletters, and social media..


If you would like to become a member of our charity please click here to apply. We will also keep you updated on any potential research projects and surveys as and when they come available.

Our challenge to find your cure

Proudly supporting the NHS EDS National Diagnostic Service

Our office hours

Monday - Friday09:00 - 18:00

Helpline: 0800 917 8495

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