After reading about EDS online everything started to fall into place. We got referred straight away to our local consultant. Despite being told he bruised like any other normal child we were eventually referred to see a Rheumatologist Doctor in Leeds. She referred us to the EDS clinic in Sheffield. Ted had a skin biopsy on the first appointment as it was clear the clinical signs pointed towards the Vascular form.
"Ted is still the same beautiful, amazing boy he always was but now with an invisible disease
We waited 2 months to get the devastating news. Words cannot express our emotions that day but we knew this was the beginning of a new journey, a difficult and one that was going to have many ups and downs. Ted is still the same beautiful, amazing boy he always was but now with an invisible disease.
He is a very special little man and we will do whatever we can to help him have a happy and fulfilling life and together decided that we would help raise awareness of this condition to help make the invisible, visible!