Katie's Blog

Katie's blog covers a range of topics and personal experiences living with Vascular EDS. Katie is also on Twitter @TranslucentOne

It was Invisibility Disability Week! In this video i talk about my most recent visit to ER.

It's National Coming Out Day!

Katie covers the support needed for the family of Caroline Patrona.

How to get a cool ER book!

A liitle bit more on the collagen defect that causes symptons of Vascular Ehlers-Danlos Syndrome, as well as a shout out to Annabelle's Challenge in the UK!

A week of appeals. Thanks for listening and helping me spread awareness!

Quick talk about my week, knee sparins, emotional turmoil, and the steps towards having the right doctors!

What emergency situations Vascular Ehlers-Danlos Syndrome may cause, some characteristic features of vEDS, and day 2 of learning Swedish!

I got something very special in the mail today from the PA students I talked to a couple of weeks ago. Needed it today. Thank you!

I've decided to start this blog. Going to be talking about Vascular Ehlers-Danlos Syndrome (or Type IV), and my life with it. Hoping to post once a week or so.


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