Katie suddenly and unexpectedly passed away on the 14th August 2014 at the age of 33, just one week after
giving birth to their first daughter Megan Katie Rose.
It transpires that
Katie unknowingly suffered from Vascular EDS (VEDS), the most serious form of EDS where arteries, blood vessels and organs are at risk of rupture even from minor trauma, causing reduced life
In Katie’s case, the
additional pressure placed on the body by childbirth caused a dissection of a major artery that could not be controlled.
Prior to her death,
Katie lived a normal life where she had travelled to many parts of the world, had undertaken parachute jumping, wakeboarding, white water rafting and been an air hostess and a police officer. All of
this was achieved with no signs of illness, proving EDS really can be invisible.
VEDS unfortunately has
potential implications for blood relatives, resulting in the need for family members to be tested for the syndrome. In Megan’s case, the probability of her having VEDS is 1 in