In memory of Katie Lammers

Katie suddenly and unexpectedly passed away on the 14th August 2014 at the age of 33, just one week after giving birth to their first daughter Megan Katie Rose.


It transpires that Katie unknowingly suffered from Vascular EDS (VEDS), the most serious form of EDS where arteries, blood vessels and organs are at risk of rupture even from minor trauma, causing reduced life expectancy.


In Katie’s case, the additional pressure placed on the body by childbirth caused a dissection of a major artery that could not be controlled. 


Prior to her death, Katie lived a normal life where she had travelled to many parts of the world, had undertaken parachute jumping, wakeboarding, white water rafting and been an air hostess and a police officer. All of this was achieved with no signs of illness, proving EDS really can be invisible.


VEDS unfortunately has potential implications for blood relatives, resulting in the need for family members to be tested for the syndrome. In Megan’s case, the probability of her having VEDS is 1 in 2.


Vascular EDS Conference 2017

We are proud to announce that Annabelle's Challenge and Ehlers-Danlos Support UK will be jointly hosting the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Manchester.

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Monday - Friday09:00 - 18:00
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