October 30th 1958 - March 1st 2015
It is with great sadness that we share the news of a fellow vascular EDS zebra giving up his wings at a very young age, Glen Mamer passed away peacefully during the morning of March 1st 2015 aged 56.
Within days of setting up Annabelle's Challenge shortly after Annabelle was diagnosed with vascular EDS, Glen contacted us and offered his support and kind words of comfort.
During the last two years we have known Glen he has always been in touch through our facebook page giving our family and in particular offering Annabelle words of comfort and love.
Glen will be missed by so many and we are blessed to have his support over the last two years.
Glen, we will miss you so much and you will always be in our thoughts. Below we share our first encounter we had with you during our emotional time coming to terms with a diagnosis of vascular EDS for Annabelle and now we share our emotions back to you, an amazing gentleman and fellow zebra; Glen Mamer RIP.
so god bless you and Annabelle and the rest of your family and take care of your sweet child......
Vascular EDS Conference 2017
We are proud to announce that Annabelle's Challenge and Ehlers-Danlos Support UK will be jointly hosting the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Manchester.
|Monday - Friday||09:00 - 18:00|
|Reg Charity No. 1157074|