Latest News 

Friday 20th May 2016 is International #REDS4VEDS DAY. It's your opportunity to help raise awareness of vascular EDS by wearing something red and sharing your photo on social media using the hashtag #Reds4Veds

Annual charity ball raises £3,100 for Annabelle's Challenge. Our amazing Masquearade Ball raised a fantastic £3,100 for the charity. Over 200 guests attended the event helping to raise awareness of vascular EDS.

New drug application for rare diseases including vascular EDS. Acer Therapeutics Inc., a pharmaceutical company developing therapies for serious rare diseases with significant unmet medical need.

It's MAY EDS Awareness Month. May is our rare communities opportunity to shout out loud and raise awareness of EDS & vascular ED. Join Annabelle's Challenge and help us make the invisble visible.

Festive fundraiser at Bury accountants raises £900 for local charity. Horsfield & Smith brought together a collection of local businesses to raise £900 for Annabelle's Challenge.

Charity with Bury youngster Annabelle Griffin at its heart celebrates third anniversary. A Bury are celebrating three years of raising awareness of their daughter's rare and life threatening condition.

Girl who could be killed by playground bump enjoying her first year at school. She has become something of a Bury celebrity — the spirited young girl with the wide smile for whom a bump in the playground could be fatal.

Annabelle's Challenge is an official partner with MedicAlert UK to support patients with vascular EDS. Just been diagnosed with vascular EDS? Join our charity today & receive FREE membership & discounts to Medic Alert UK.

Thank you to all our supporters at Bury FC Family Fun Day. Annabelle's Challenge hosted their first home game 'Family Fun Day' at Bury FC on Saturday 15th August raising awareness to 4,914 visitors.

 

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