Annabelle’s Challenge receives The Queen's Award!
For Annabelle's Challenge, a fantastic opportunity has arisen..all the charity work that and raising awareness of VEDS has proved to be worth it and they have been nominated for the Queen's Award for Voluntary Service!
When Jared and Sarah's daughter Annabelle had been diagnosed with vascular EDS, they decided to start a bespoke charity that was specifically for vEDS, so that they could raise awareness for the syndrome, as well as supporting the families who may be going through what they had.
It can be a difficult time, especially as it is such a rare diagnosis, meaning that families going through this, appreciate every bit of support and knowledge they can come across. That is where Annabelle's Challenge comes in to support people and bring a bit of light into what can be a particularly distressing time. Providing support and advice to reduce the strain of the diagnosis, free medic alert and financial support to assist families and possible lifestyle changes. The charity also supports research which is absolutely essential with such a rare diagnosis.
Jared and Sarah were absolutely thrilled to have been invited to attend the Buckingham Palace garden party and to be recognised for their progress in making people more aware of vascular EDS.
Events and recognition such as this really
If you are interested in supporting Annabelle's Challenge or you require some support, get in touch with Jared on 0161 797 4746.
Annabelle’s Challenge heads to Westminster on Rare Disease Day with James Frith MP.
The charity with a brave girl from Bury at its heart attended the reception in Parliament to mark Rare Disease Day with Bury North MP James Frith to discuss their concerns first hand coping with a child diagnosed with a rare genetic condition and share their vision for the future with the charity.
Annual charity ball raises £3,100 for Annabelle's Challenge
Our amazing Masquerade Ball raised a fantastic £3,100 for the charity. Over 200 guests attended the event helping to raise awareness of vascular EDS.
New drug application for rare diseases including vascular EDS
Acer Therapeutics Inc., a pharmaceutical company developing therapies for serious rare diseases with significant unmet medical need.
Festive fundraiser at Bury accountants raises £900 for local charity
Horsfield & Smith brought together a collection of local businesses to raise £900 for Annabelle's Challenge.
Charity with Bury youngster Annabelle Griffin at its heart celebrates third anniversary
A Bury are celebrating three years of raising awareness of their daughter's rare and life threatening condition.
Girl who could be killed by playground bump enjoying her first year at school
She has become something of a Bury celebrity — the spirited young girl with the wide smile for whom a bump in the playground could be fatal.
Thank you to all our supporters at Bury FC Family Fun Day
Annabelle's Challenge hosted their first home game 'Family Fun Day' at Bury FC on Saturday 15th August raising awareness to 4,914 visitors.