Latest News 

Annabelle’s Challenge heads to Westminster on Rare Disease Day with James Frith MP.

The charity with a brave girl from Bury at its heart attended the reception in Parliament to mark Rare Disease Day with Bury North MP James Frith to discuss their concerns first hand coping with a child diagnosed with a rare genetic condition and share their vision for the future with the charity.

Annual charity ball raises £3,100 for Annabelle's Challenge

Our amazing Masquerade Ball raised a fantastic £3,100 for the charity. Over 200 guests attended the event helping to raise awareness of vascular EDS.

New drug application for rare diseases including vascular EDS

Acer Therapeutics Inc., a pharmaceutical company developing therapies for serious rare diseases with significant unmet medical need.

Festive fundraiser at Bury accountants raises £900 for local charity

Horsfield & Smith brought together a collection of local businesses to raise £900 for Annabelle's Challenge.

Charity with Bury youngster Annabelle Griffin at its heart celebrates third anniversary

A Bury are celebrating three years of raising awareness of their daughter's rare and life threatening condition.

Girl who could be killed by playground bump enjoying her first year at school

She has become something of a Bury celebrity — the spirited young girl with the wide smile for whom a bump in the playground could be fatal.

Thank you to all our supporters at Bury FC Family Fun Day

Annabelle's Challenge hosted their first home game 'Family Fun Day' at Bury FC on Saturday 15th August raising awareness to 4,914 visitors.


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