On a hot summers day in July 2013 we travelled down to London to the Sylvia Young Music Theatre to meet Lara Bloom from EDS UK and the kids who kindly donated their time to come together as a 'choir' to sing and makes a video of singer-songwriter Kitty Richardson's song The Cure.
This video includes AJ and the rest of the EDS kid’s choir, it was a truly memorable day and also emotional to watch these kids who suffer from EDS perform so well and so brave on the day.
Vascular EDS Conference 2017
We are proud to announce that Annabelle's Challenge and Ehlers-Danlos Support UK will be jointly hosting the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Manchester.
|Monday - Friday||09:00 - 18:00|
|Reg Charity No. 1157074|