On Saturday 26th October 2013 we hosted our first ever ball at the Albert Halls in Bolton. This fabulous event was a sell out with over 230 guests attending. Live entertainment was provided by Laura Mac who supported our main act BBC's The Voice finalist David Julien.
A vocal, silent & raffle auction was held during the evening.
Special guests including the Mayor & Mayoress of both Bolton and Bury towns attended along with Lara Bloom, manager of EDS UK who gave an emotional and moving speech.
On Saturday 28th September 'Annabelle's Angels' descended onto our local ASDA store to carry out EDS awareness and raise money by bag packing & helping the shoppers.
Thanks to all our helpers and shoppers we raised £375 for EDS UK.
On Sunday 8th September 2013,
Hannah Alderson from Bury donned her running shoes for the 2013 City of Salford 10k run in aid of Annabelle’s Challenge & Ehlers-Danlos Support UK.
Hannah hit the finish line in just 46 minutes and came 32nd out of 664 in the female open group and overall 80th out of 1,387 runners.
Set on a fast 10k course around Salford Quays, they have a new starting section to the race along the wide boulevard of The Quays, allowing for the field to thin out before turning left on to Broadway and heading back into MediaCityUK.
The 10km route will take me through Trafford Park, Once in Trafford Park; it flows around the area, past Manchester United FC at Old Trafford, before heading back over the Lowry Bridge and into the Salford Quays area again for the final 1km.
I am running in aid of Annabelle’s Challenge to help raise awareness and funds for Ehlers-Danlos Support UK, Annabelle Griffin is from my home town of Bury, Greater Manchester, Annabelle was just 3 years old when she was diagnosed last December with Vascular Ehlers-Danlos Syndrome; a life threatening and incurable condition.
Toyota & RRG Rochdale supports Annabelle’s Challenge & Ehlers-Danlos Support UK with
Toyota Fund for a Better Tomorrow.
Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome and help them to live a full, active and positive life. EDS is a genetic connective tissue condition that is a multi-systemic syndrome.
Earlier this year RRG Rochdale work colleagues donned their trainers and took part in the Great Manchester 10k Run including Jared Griffin, Centre Principal whose 4 year daughter has been diagnosed with the life threatening and incurable Vascular type of EDS.
RRG Rochdale also supported Annabelle’s Challenge with a Toyota GT86 ‘EDS awareness car’ to help raise the profile of EDS UK and also raised awareness of EDS within the centre.
Due to the generous donations raised through Annabelle's Challenge including a £1,450 grant from Toyota (GB) a total of £6,000 was raised which has allowed EDS UK to fund a project to train 42 new volunteer Area Contacts and their Trustees at a residential conference, so that they can provide support and help run events for EDS members all over the country.
Charities, schools and good causes across the country are receiving valuable support from the Toyota Fund for a Better Tomorrow.
The fund, set up and administered by Toyota GB, works at grassroots level, involving Toyota centres in projects that help improve the quality of life and the environment in their local communities.
Grants are available for Toyota centres and their partners in their local community. Each submission is judged on the positive impact it can have on the community and how this can be measured.
The degree of team-work involved in the activity is also considered, together with the project’s focus – such as the environment, education, well-being or road safety. In 2012, more than 50 projects received help.
Pictured: Lara Bloom, Development Manager EDS UK, & Jared Griffin, Centre Principal RRG Rochdale with Annabelle Griffin.
Our local ASDA (Walmart) store has a community life section and every month 3 local charities / groups are nominated to go 'head to head' with the top prize being £200.
For July Annabelle's Challenge was nominated.
Results are based on votes by token at the check out - so make sure you check in if when you are visiting Bury and vote for AJ!
1st June 2013
Great night of entertainment with Michael Buble Tribute headlining the night, live auction, raffle prizes, hot food and a reasonably priced bar to ensure you have a fantastic night to celebrate Annabelle’s Challenge.
Help to raise awareness and funds for Ehlers-Danlos Support UK and Annabelle's Challenge Trust Fund and order your ticket now.
Advanced Tickets are only £5 each including free child entry (£15 on the door) entertainment & hot food plus a great night with AJ!
26th May 2013
This year the RRG Great Manchester Runners will be donning their trainers in aid of a cause very close to home, and we need you to dig deep and support this incredibly worthwhile cause.
Annabelle (AJ) Griffin is the daughter of Jared Griffin who is a General Manager at RRG Rochdale and in December 2012 at just 3 was diagnosed with Vascular Ehlers-Danlos Syndrome; a life threatening and incurable condition.
28th April 2013
We attended the Vintage Extravaganza Event at Tottington High School with the Toyota GT86 EDS Awareness Car and AJ!.
Also at the event was our Toffee Tombola stall with sweets kindly donated by local stores including Tesco, ASDA & 99p Stores.
We also had 'name the dog' and the day was a success for AJ's first event!
Vascular EDS Conference 2017
We are proud to announce that Annabelle's Challenge and Ehlers-Danlos Support UK will be jointly hosting the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Manchester.
|Monday - Friday||09:00 - 18:00|
|Reg Charity No. 1157074|