Annabelle’s Challenge receives a £1,000 welcome boost towards supporting families affected by Vascular Ehlers-Danlos syndrome thanks to the Bury District Freemasons.
The Bury based charity is the UK’s leading charity for people with vascular EDS, a life threatening genetic disorder.
The first ever conference in the world for people with vascular EDS and for members of the medical profession was held at the Village Hotel last May.
Following on from the success of that event the charity is now organising a further event in September which will see 30 families come together for a retreat weekend with talks provided by the NHS EDS Diagnostic Service.
Annabelle’s Challenge was one of the three charities supported by Mike Connolly during his year of office as the Mayor of Bury. The funds raised during that year provided much of the support for the 2017 conference and towards this year’s retreat weekend which will take place in Blackpool.
Jared Griffin “We are extremely grateful for the generosity of the Bury Freemasons; this donation helps us to host 30 families in coming together and provide much needed support which is amazing.”
“The focus of this year’s event will be to allow the families to interact and thereby benefit from a realisation and acknowledgement that they are not alone living with this condition.”
Bury District Charity Steward Steve Clark met up with Jared and Annabelle, 9, to hand over a cheque for £1,000.
Steve Clark “Bury District Freemasons and the East Lancashire Masonic Charity is proud to be able to contribute to the success of the 2018 retreat weekend”.