Join us

Join us today and help raise awareness of vascular EDS. Lifetime membership is available to EVERYONE and it's FREE TO JOIN. If you have been diagnosed with vascular EDS you will also be eligible for 12 months free MedicAlert UK membership with exclusive discounts on bracelets.

Membership benefits

  • Free membership for life
  • Vascular EDS Support & Advice
  • Free membership to MedicAlert UK (vascular EDS UK patients only) saving you £32.
  • Exclusive discount of up to £10 towards your MedicAlert bracelets & jewellery
  • Free Vascular EDS information leaflets
  • Information updates & notifications  
  • Access to conference videos on the website
  • Free Fundraising Pages
  • Access to a closed UK Facebook group (diagnosed patients and families)
  • Prioirity tickets to AC events and conferences
  • Updates from our EDS & Rare Disease community
  • EDS UK parental support from Sarah Griffin
  • Freephone helpline 0800 917 8495
  • E-newsletter containing updates on our work, fundraising ideas, news from the vEDS community, and the latest developments on the condition. (You can unsubscribe at any time using the link in the emails you receive)

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We won't pass your details on to anyone else. We work closely with the NHS EDS Diagnostic Service who can provide additional support including genetic counselling for UK patients, we would obtain your permission before referring to this service. More information about how we'll keep your data safe can be found in our Privacy Policy.

 

Your application will be processed usually within 10 working days.

Membership Policy

1.0 Membership and benefits

 

Annabelle’s Challenge offers free membership to those who are touched by vascular EDS and anyone who wishes to support and volunteer for the charity.

 

We reserve the right to amend or cancel any benefits and will notify members in advance of doing so.

 

By becoming a member of Annabelle’s Challenge, you are only entitled to the benefits outlined on the website. Whilst we recognise the importance of the voice of our members in the work we do and have mechanisms in place to seek members’ opinions on a variety of topics, a member has no right to vote on decisions around how the charity operates.

 

Annabelle’s Challenge reserves the right to cancel a membership at any time for reasons including but not limited to:

 

  • Bullying of other members
  • Bringing the charity into disrepute
  • Abusing members of staff or volunteers of Annabelle’s Challenge
  • Acts of fraud against the charity or other organisations connected to the charity

 

2.0 Cancellation of membership

 

You have the right to cancel your membership at any time.

 

If you wish to cancel your free membership please contact the office on 0161 797 4746 or email info@annabelleschallenge.org

 

3.0 Renewing your membership

 

There is no need to renew your membership. It runs until you no-longer wish to use it.

Privacy Policy

Annabelle’s Challenge operates this website. At Annabelle’s Challenge we take your right to privacy very seriously. For that reason, we have set out our Privacy Policy, so you can make sure you understand how and why we use the information you give us. The terms of this policy may change, so please check it from time to time. We are also registered with the Information Commissioners Office.

V3. Updated 24th May 2018. Next Review May 2020.

Proudly supporting the NHS EDS National Diagnostic Service

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© Copyright 2013-2018 Annabelles Challenge. UK Registered Charity No.1157074 Helpline 0800 917 8495 Email: info@annabelleschallenge.org