Join us today and help raise awareness of vascular EDS. Membership is available to EVERYONE  and it's FREE TO JOIN. If you have been diagnosed with vascular EDS you will also be eligible for 12 months free MedicAlert UK membership with exclusive discounts on bracelets.

Membership benefits

  • Vascular EDS Support & Advice
  • FREE membership to MedicAlert UK (vascular EDS UK patients only) saving you £32.
  • Exclusive discount of up to £10 towards your MedicAlert bracelets & jewellery
  • FREE Vascular EDS information leaflets
  • Information updates & notifications  
  • Awareness Posters
  • Free Fundraising Pages
  • Newsletters 
  • Updates from our EDS & Rare Disease community
  • EDS UK parental support from Sarah Griffin
  • Helpline support

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Privacy Policy

Annabelle’s Challenge (“we”) promises to respect any personal data you share with us, or that we get from other organisations and keep it safe. We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect. 


Developing a better understanding of our members through their personal data allows us to make better decisions, fundraise more efficiently and, ultimately, helps us to reach our goal of finding a cure for Vascular EDS. 


Our marketing communications include information about our latest news, campaigns and fundraising work. If you would like to receive such communications but have not opted in please contact us on 0161 207 8337 or

V2. Updated October 2017. Next Review October 2018.

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© Copyright 2013-2018 Annabelles Challenge. UK Registered Charity No.1157074 Tel: 0161 207 8337 Email: