Join us today and help raise awareness of vascular EDS. Lifetime membership is available to EVERYONE and it's FREE TO JOIN. If you have been diagnosed with vascular EDS you will also be eligible for 12 months free MedicAlert UK membership with exclusive discounts on bracelets.
1.0 Membership and benefits
Annabelle’s Challenge offers free membership to anybody who is touched by vascular EDS and/or anybody who wishes to support / volunteer for the charity.
We reserve the right to amend or cancel any benefits and will notify members in advance of doing so.
By becoming a member of Annabelle’s Challenge, you are only entitled to the benefits outlined on the website. Whilst we recognise the importance of the voice of our members in the work we do and have mechanisms in place to seek members’ opinions on a variety of topics, a member has no right to vote on decisions around how the charity operates.
Annabelle’s Challenge reserves the right to cancel a membership at any time for reasons including but not limited to:
Bullying of other members
Bringing the charity into disrepute
Abusing members of staff or volunteers of Annabelle’s Challenge
Acts of fraud against the charity or other organisations connected to the charity
2.0 Cancellation of membership
You have the right to cancel your membership at any time.
To cancel free membership, you can do so in the ‘join’ section of the website and/or by unsubscribing from our e-newsletter.
If you wish to cancel your membership because you are unhappy with the quality of the service provided or you think we falsely advertised the benefits, please contact the office on firstname.lastname@example.org or 0161 207 8337.
3.0 Renewing your membership
There is no need to renew free Annabelle’s Challenge membership. It runs until you no-longer wish to use it.
v.1.0 February 2018: Annabelle’s Challenge, Europa House, Barcroft Street, Bury, BL9 5BT. Registered charity no. 1157074.
Annabelle’s Challenge (“we”) promises to respect any personal data you share with us and keep it safe. We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect.
Developing a better understanding of our members through their personal data allows us to make better decisions, fundraise more efficiently and, ultimately, helps us to reach our goal of finding a cure for Vascular EDS.
Your membership is free and includes regular updates through our e-Newsletters and annual report which is sent by post (UK only) and by email to all members once per year.
Our marketing communications include information about our latest news, campaigns and fundraising work.
V2. Updated October 2017. Next Review October 2018.