Join us

Join us today and help raise awareness of vascular EDS. Lifetime membership is available to EVERYONE and it's FREE TO JOIN. If you have been diagnosed with vascular EDS you will also be eligible for 12 months free MedicAlert UK membership with exclusive discounts on bracelets.

Membership benefits

  • Free membership for life
  • Vascular EDS Support & Advice
  • Free membership to MedicAlert UK (vascular EDS UK patients only) saving you £32.
  • Exclusive discount of up to £10 towards your MedicAlert bracelets & jewellery
  • Free Vascular EDS information leaflets
  • Information updates & notifications  
  • Access to conference videos on the website
  • Free Fundraising Pages
  • Access to a closed Facebook group (UK patients and families)
  • Prioirity tickets to AC events and conferences
  • Updates from our EDS & Rare Disease community
  • EDS UK parental support from Sarah Griffin
  • Freephone helpline support
  • Every Friday we will send you our newsletter via email containing updates on our work, fundraising ideas, news from the vEDS community, and the latest developments on vascular EDS.

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Members Policy

1.0 Membership and benefits

 

Annabelle’s Challenge offers free membership to anybody who is touched by vascular EDS and/or anybody who wishes to support / volunteer for the charity.

 

We reserve the right to amend or cancel any benefits and will notify members in advance of doing so.

 

By becoming a member of Annabelle’s Challenge, you are only entitled to the benefits outlined on the website. Whilst we recognise the importance of the voice of our members in the work we do and have mechanisms in place to seek members’ opinions on a variety of topics, a member has no right to vote on decisions around how the charity operates.

 

Annabelle’s Challenge reserves the right to cancel a membership at any time for reasons including but not limited to:

 

Bullying of other members

Bringing the charity into disrepute

Abusing members of staff or volunteers of Annabelle’s Challenge

Acts of fraud against the charity or other organisations connected to the charity

 

2.0 Cancellation of membership

 

You have the right to cancel your membership at any time.

 

To cancel free membership, you can do so in the ‘join’ section of the website and/or by unsubscribing from our e-newsletter.

 

If you wish to cancel your membership because you are unhappy with the quality of the service provided or you think we falsely advertised the benefits, please contact the office on info@annabelleschallenge.org or 0161 207 8337.

 

3.0 Renewing your membership

 

There is no need to renew free Annabelle’s Challenge membership. It runs until you no-longer wish to use it.

 

v.1.0 February 2018: Annabelle’s Challenge, Europa House, Barcroft Street, Bury, BL9 5BT. Registered charity no. 1157074.

Privacy Policy

Annabelle’s Challenge (“we”) promises to respect any personal data you share with us and keep it safe. We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect. 

 

Developing a better understanding of our members through their personal data allows us to make better decisions, fundraise more efficiently and, ultimately, helps us to reach our goal of finding a cure for Vascular EDS. 

 

Your membership is free and includes regular updates through our e-Newsletters and annual report which is sent by post (UK only) and by email to all members once per year.

 

Our marketing communications include information about our latest news, campaigns and fundraising work.

 

To read our Privacy Policy in full please Click Here.

V2. Updated October 2017. Next Review October 2018.

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© Copyright 2013-2018 Annabelles Challenge. UK Registered Charity No.1157074 Office: 0161 207 8337 Email: info@annabelleschallenge.org