Talk to us

Looking for answers? When you have a hospital appointment or visit your GP, you may not take in everything they tell you, or know which questions to ask. We are here to answer your questions when you get home.

For help with worries and advice about vascular EDS, to someone who’ll listen if you just want to talk, we’ll be there. You’re not alone. Call us 0161 207 8337 (Monday to Friday, 9am–6pm). 

Out of hours help

Urgent Calls

If your call is URGENT you can contact us by phone or text on 07812 714744.


If your online you can also contact us by Email Twitter & Facebook

Online Community

Vascular EDS might be rare but your not alone! We have some amazing Vascular EDS Support Groups that have been set up by those with the condition close to their heart. They are always open and full of members ready to listen and offer support.


Our office hours

Monday - Friday09:00 - 18:00
Reg Charity No. 1157074

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